Social representations of premature birth from the perspective of individuals born preterm in the 1990s.

INTRODUCTION: Prematurity is a public health problem that calls to focus on its causes and consequences through a trans disciplinary approach. There are no studies analyzing premature birth from the perspective of individuals born preterm. OBJECTIVE: To identify social representations associated with premature birth of individuals born preterm in the 1990s in Argentina. POPULATION AND METHODS: Twelve focus groups were conducted with individuals born preterm with a birth weight<1500 g assisted at tertiary care facilities between 1990 and 1995. Focus group contents were analyzed based on the social representation theory. RESULTS: Fifty-nine adolescents and youth participated; their median age was 18.5±2.3 years old. Based on the analysis of focus groups, six core themes were developed: life experience, parents' memories and experiences, overprotection body, education, relationship with the medical practice and knowledge. CONCLUSIONS: The methodology used allowed to create a space for mutual recognition and reflection for participants. Prematurity is a significant element, especially in those who suffered major sequelae. Adolescents and youth give a warning on the negative effects caused by overprotective parents and reveal the possibility of redefining the challenges associated with their history of premature birth.

Representaciones sociales de la prematurez desde la perspectiva de personas nacidas prematuras en la década de los noventa / Social representations of premature birth from the perspective of individuals born preterm in the 1990s

Introducción. La prematurez es un problema de salud pública que desafía a enfocar sus causas y consecuencias con un abordaje multidisciplinario. No hay estudios que analicen la prematurez desde la perspectiva de personas que nacieron de parto prematuro. Objetivo. Identificar las representaciones sociales asociadas a la prematurez de personas nacidas de parto prematuro en Argentina en la década de los noventa. Población y métodos. Se realizaron 12 grupos focales, con personas que nacieron prematuramente y con peso < 1500 g, atendidas en centros de tercer nivel entre 1990 y 1995. Los contenidos de los grupos focales se analizaron sobre la base de la teoría de las representaciones sociales. Resultados. Participaron 59 jóvenes y adolescentes, con una mediana de edad de 18,5 ± 2,3 años. A partir del análisis de los grupos focales, se elaboraron 6 núcleos temáticos: trayectoria de vida, recuerdos y vivencias de los padres, sobreprotección, cuerpo, escolaridad, relación con las prácticas y saberes médicos. Conclusiones. La metodología utilizada generó un espacio de mutuo reconocimiento y reflexión para los participantes. La prematurez constituye un elemento significativo, principalmente en aquellos que tuvieron mayores secuelas. Los jóvenes y adolescentes alertan sobre los efectos negativos de la sobreprotección de los padres, así como dan cuenta de la posibilidad de resignificar las dificultades de su historia de prematurez.

Introduction.Prematurity is a public health problem that calls to focus on its causes and consequences through a trans disciplinary approach. There are no studies analyzing premature birth from the perspective of individuals born preterm. Objective.To identify social representations associated with premature birth of individuals born preterm in the 1990s in Argentina. Population and Methods.Twelve focus groups were conducted with individuals born preterm with a birth weight <1500 g assisted at tertiary care facilities between 1990 and 1995. Focus group contents were analyzed based on the social representation theory. Results.Fifty-nine adolescents and youth participated; their median age was 18.5 ± 2.3 years old. Based on the analysis of focus groups, six core themes were developed: life experience, parents' memories and experiences, overprotection body, education, relationship with the medical practice and knowledge. Conclusions.The methodology used allowed to create a space for mutual recognition and reflection for participants. Prematurity is a significant element, especially in those who suffered major sequelae. Adolescents and youth give a warning on the negative effects caused by overprotective parents and reveal the possibility of redefining the challenges associated with their history of premature birth.

Representaciones sociales de la prematurez desde la perspectiva de personas nacidas prematuras en la década de los noventa / Social representations of premature birth from the perspective of individuals born preterm in the 1990s

Introducción. La prematurez es un problema de salud pública que desafía a enfocar sus causas y consecuencias con un abordaje multidisciplinario. No hay estudios que analicen la prematurez desde la perspectiva de personas que nacieron de parto prematuro. Objetivo. Identificar las representaciones sociales asociadas a la prematurez de personas nacidas de parto prematuro en Argentina en la década de los noventa. Población y métodos. Se realizaron 12 grupos focales, con personas que nacieron prematuramente y con peso < 1500 g, atendidas en centros de tercer nivel entre 1990 y 1995. Los contenidos de los grupos focales se analizaron sobre la base de la teoría de las representaciones sociales. Resultados. Participaron 59 jóvenes y adolescentes, con una mediana de edad de 18,5 ± 2,3 años. A partir del análisis de los grupos focales, se elaboraron 6 núcleos temáticos: trayectoria de vida, recuerdos y vivencias de los padres, sobreprotección, cuerpo, escolaridad, relación con las prácticas y saberes médicos. Conclusiones. La metodología utilizada generó un espacio de mutuo reconocimiento y reflexión para los participantes. La prematurez constituye un elemento significativo, principalmente en aquellos que tuvieron mayores secuelas. Los jóvenes y adolescentes alertan sobre los efectos negativos de la sobreprotección de los padres, así como dan cuenta de la posibilidad de resignificar las dificultades de su historia de prematurez.(AU)

Introduction.Prematurity is a public health problem that calls to focus on its causes and consequences through a trans disciplinary approach. There are no studies analyzing premature birth from the perspective of individuals born preterm. Objective.To identify social representations associated with premature birth of individuals born preterm in the 1990s in Argentina. Population and Methods.Twelve focus groups were conducted with individuals born preterm with a birth weight <1500 g assisted at tertiary care facilities between 1990 and 1995. Focus group contents were analyzed based on the social representation theory. Results.Fifty-nine adolescents and youth participated; their median age was 18.5 ± 2.3 years old. Based on the analysis of focus groups, six core themes were developed: life experience, parents memories and experiences, overprotection body, education, relationship with the medical practice and knowledge. Conclusions.The methodology used allowed to create a space for mutual recognition and reflection for participants. Prematurity is a significant element, especially in those who suffered major sequelae. Adolescents and youth give a warning on the negative effects caused by overprotective parents and reveal the possibility of redefining the challenges associated with their history of premature birth.(AU)

Representaciones sociales de la prematurez desde la perspectiva de personas nacidas prematuras en la década de los noventa / Social representations of premature birth from the perspective of individuals born preterm in the 1990s

Introducción. La prematurez es un problema de salud pública que desafía a enfocar sus causas y consecuencias con un abordaje multidisciplinario. No hay estudios que analicen la prematurez desde la perspectiva de personas que nacieron de parto prematuro. Objetivo. Identificar las representaciones sociales asociadas a la prematurez de personas nacidas de parto prematuro en Argentina en la década de los noventa. Población y métodos. Se realizaron 12 grupos focales, con personas que nacieron prematuramente y con peso < 1500 g, atendidas en centros de tercer nivel entre 1990 y 1995. Los contenidos de los grupos focales se analizaron sobre la base de la teoría de las representaciones sociales. Resultados. Participaron 59 jóvenes y adolescentes, con una mediana de edad de 18,5 ± 2,3 años. A partir del análisis de los grupos focales, se elaboraron 6 núcleos temáticos: trayectoria de vida, recuerdos y vivencias de los padres, sobreprotección, cuerpo, escolaridad, relación con las prácticas y saberes médicos. Conclusiones. La metodología utilizada generó un espacio de mutuo reconocimiento y reflexión para los participantes. La prematurez constituye un elemento significativo, principalmente en aquellos que tuvieron mayores secuelas. Los jóvenes y adolescentes alertan sobre los efectos negativos de la sobreprotección de los padres, así como dan cuenta de la posibilidad de resignificar las dificultades de su historia de prematurez.(AU)

Introduction.Prematurity is a public health problem that calls to focus on its causes and consequences through a trans disciplinary approach. There are no studies analyzing premature birth from the perspective of individuals born preterm. Objective.To identify social representations associated with premature birth of individuals born preterm in the 1990s in Argentina. Population and Methods.Twelve focus groups were conducted with individuals born preterm with a birth weight <1500 g assisted at tertiary care facilities between 1990 and 1995. Focus group contents were analyzed based on the social representation theory. Results.Fifty-nine adolescents and youth participated; their median age was 18.5 ± 2.3 years old. Based on the analysis of focus groups, six core themes were developed: life experience, parents memories and experiences, overprotection body, education, relationship with the medical practice and knowledge. Conclusions.The methodology used allowed to create a space for mutual recognition and reflection for participants. Prematurity is a significant element, especially in those who suffered major sequelae. Adolescents and youth give a warning on the negative effects caused by overprotective parents and reveal the possibility of redefining the challenges associated with their history of premature birth.(AU)

Series de Pediatría Garrahan. El niño que fue prematuro

A 27 años del nacimiento del Hospital Garrahan, sentimos la necesidad de ponernos en contacto con todos los pediatras para compartir con ellos las estrategias de atención del niño y su familia utilizadas en nuestra institución, destacar la importancia del trabajo interdisciplinario y colaboración permanente. En este volumen desarrollamos el tema del niño que fue prematuro, ya que estos pacientes presentan al pediatra desafíos específicos y novedosos. Si bien la prematurez es la principal causa de mortalidad infantil, la sobrevida de los prematuros ha aumentado significativamente en los últimos años, y por lo tanto estos niños acceden al cuidado pediátrico con creciente frecuencia y vulnerabilidad. Algunos de ellos pueden sufrir secuelas de distinto grado y en diferentes aspectos de su desarrollo, crecimiento o función respiratoria. Dado que el rol del pediatra es fundamental en el diagnóstico, la prevención y el tratamiento de posibles secuelas, el reconocimiento de sus necesidades especiales y cuidado centrado en la familia, el profesional encontrará aquí aspectos epidemiológicos, de identificación y prevención de riesgos, comunicación con la familia, oportunidades de interconsultas y abordaje de la discapacidad mediante el análisis de casos clínicos.

Social representations of premature birth from the perspective of individuals born preterm in the 1990s. / Social representations of premature birth from the perspective of individuals born preterm in the 1990s.

INTRODUCTION: Prematurity is a public health problem that calls to focus on its causes and consequences through a trans disciplinary approach. There are no studies analyzing premature birth from the perspective of individuals born preterm. OBJECTIVE: To identify social representations associated with premature birth of individuals born preterm in the 1990s in Argentina. POPULATION AND METHODS: Twelve focus groups were conducted with individuals born preterm with a birth weight<1500 g assisted at tertiary care facilities between 1990 and 1995. Focus group contents were analyzed based on the social representation theory. RESULTS: Fifty-nine adolescents and youth participated; their median age was 18.5±2.3 years old. Based on the analysis of focus groups, six core themes were developed: life experience, parents memories and experiences, overprotection body, education, relationship with the medical practice and knowledge. CONCLUSIONS: The methodology used allowed to create a space for mutual recognition and reflection for participants. Prematurity is a significant element, especially in those who suffered major sequelae. Adolescents and youth give a warning on the negative effects caused by overprotective parents and reveal the possibility of redefining the challenges associated with their history of premature birth.

Crecimiento, desarrollo, integración social y prácticas de crianza en niños que viven con sus madres en prisión / Growth, development, social integration and parenting practices on children living with their mothers in prison

La prisión se considera un medioambiente de muy alto riesgo, pero hay muy escasa información sobre el crecimiento y desarrollo (C y D) de los niños que viven allí. Con el objetivo de evaluarlo, se llevó a cabo un estudio transversal en 68 niños que vivían con sus 66 madres en la Unidad Penitenciaria 31, de Ezeiza (a 30 km de la ciudad de Buenos Aires). Métodos. Se midió el peso, la estatura, se administró la PRUNAPE (para pesquisa de trastornos inaparentes del desarrollo), se midió el cociente de desarrollo (Cats Clams), y el grado de confictos emocionales (prueba SQE). Resultados. El intervalo etario de las madres fue 18-45 años, mediana 23,5 a. El tiempo de estadía de los niños varió entre 0,05 a 3,95 meses. La media ± error estándar (EE) del puntaje "Z" de la longitud corporal fue de -0,30 ± 0,12; peso 0,40 ± 0,12; índice de masa corporal (IMC) 0,91 ± 0,18; perímetro cefálico 0,19 ± 0,14, y cociente de desarrollo 92,4 ± 1,7. El peso medio de nacimiento fue normal, y 7 niños de 67 no pasaron la PRUNAPE, una proporción menor que el 19,3% encontrado en centros de salud de San Isidro. Se halló un alto porcentaje (39%) de niños con trastornos emocionales, y de madres con puntajes bajos en pautas de crianza comparados al de madres que viven en sus casas en La Plata. Conclusiones. Los niños tienen menor estatura y mayor IMC que los de referencia. El 39% presenta trastornos emocionales. Los conocimientos de pautas de crianza de las madres son menores que los de madres de La Plata.

Prisons are considered a very high risk environment, but there is very scarce scientifc information on the growth and development of children who live there. Objective. With the purpose of evaluating growth and development of children living with their mothers in prison, a cross sectional survey was performed in 68 children aged 0-3 years in Unit 31, a prison for mothers with children located at 30 km from Buenos Aires. Methods. Weight, supine length, and developmental quotient (Cats Clams) was measured, PRUNAPE, and SQE-SE test were administered (screening tests for detecting developmental and emotional disorders, respectively). Mother´s child rearing practices were assessed with a previously standardized questionnaire. Results. Age range of mothers was 18-46 years, median 23.5 yr. Duration of stay in prison of children was 0.05-35 months. Mean ± standard error of "Z" score for height was -0.30 ± 0.12, weight 0.40 ± 0.12; body mass index 0.91 ± 0.18; head circumference 0.19 ± 0.14; and developmental quotient 92.4 ± 1.7. There were only 7 children out of 67 who failed the PRUNAPE. Mean Cats Clams developmental score was 91.3. ASQ-SE test showed high prevalence (39%) of emotional and social integration problems. Mother´s knowledge about child rearing practices was poorer than that found in a normal urban local population. There were no trends for results to be related to the length of stay in prison. Conclusion. Children are shorter and with higher BMI than reference. Emotional disorders are frequent (39%). Mother's knowledge about child care was poorer than that found in a near population. A program for longitudinal surveillance for all prisons in the country was proposed to the authorities.

[Growth, development, social integration and parenting practices on children living with their mothers in prison]. / Crecimiento, desarrollo, integración social y prácticas de crianza en niños que viven con sus madres en prisión.

UNLABELLED: Prisons are considered a very high risk environment, but there is very scarce scientific information on the growth and development of children who live there. OBJECTIVE: With the purpose of evaluating growth and development of children living with their mothers in prison, a cross sectional survey was performed in 68 children aged 0-3 years in Unit 31, a prison for mothers with children located at 30 km from Buenos Aires. METHODS: Weight, supine length, and developmental quotient (Cats Clams) was measured, PRUNAPE, and SQE-SE test were administered (screening tests for detecting developmental and emotional disorders, respectively). Mothers' child rearing practices were assessed with a previously standardized questionnaire. RESULTS: Age range of mothers was 18-46 years, median 23.5 yr. Duration of stay in prison of children was 0.05-35 months. Mean ± standard error of "Z" score for height was -0.30 ± 0.12, weight 0.40 ± 0.12; body mass index 0.91 ± 0.18; head circumference 0.19 ± 0.14; and developmental quotient 92.4 ± 1.7. There were only 7 children out of 67 who failed the PRUNAPE. Mean Cats Clams developmental score was 91.3. ASQ-SE test showed high prevalence (39%) of emotional and social integration problems. Mothers' knowledge about child rearing practices was poorer than that found in a normal urban local population. There were no trends for results to be related to the length of stay in prison. CONCLUSION: Children are shorter and with higher BMI than reference. Emotional disorders are frequent (39%). Mothers' knowledge about child care was poorer than that found in a near population. A program for longitudinal surveillance for all prisons in the country was proposed to the authorities.